Today I had treatment #10! I almost didn’t have it due to my blood being low, but Praise God, it came up in time to receive treatment. I was delayed last treatment, by almost a week. I now have to take injections of some miracle drug that makes my blood produce more to bring up my blood counts. VERY expensive meds! But I feel wonderful! Even though my blood was down yesterday I’ve really noticed a change. I hadn’t realized just how sluggish I’d gotten. I was wondering why I couldn’t get going, or get off the couch! Now I know, low blood.
Homeschooling is going great! I took the week off over Christmas and it set us behind a bit, but we are getting back into the swing of things. Before I had Chemo on Wednesday’s so would cram all of Joy’s schooling for that week into 2 days, but now Chemo is on Tuesdays so I do half the work on Monday and I’ll space it out through the week (more like Thursday/Friday), which is nice for her and me. She also had read 2 words all on her own (sounding out etc), bat and cat. Joy is so excited that she’s learning to read. She knows her letters and their sounds, just has a hard time figuring out what the sounds are saying.
I’m going to be doing a blog post of photo’s. I was looking through our cell phone at all the photo’s we have from this past year. It’s going to be a post letting the photo’s tell the story of our summer. Just gotta get Orlund to make something to display them easier (there are a lot).
We are also in the Birthday season! Already had Hazel and Orlund’s birthday’s. February luckily is the slower month (since I still have Chemo) with just Hugh’s birthday. The girls have already placed their ‘orders’ for birthday cakes and themes. Jacob is having a monster truck theme (girls picked) his Birthday along with cousin Ava’s is in March. April is a bunch of friends birthday’s along with Olivia’s (and my 30th), Olivia wants a Periwinkle birthday theme (Joy had that last year) so I have lots of decorations already organized and I bought a bunch over Christmas (snow theme basically), she also want’s a surprise cake, but I’m listening to everything she’s said. she wants Periwinkle on it, along with a rainbow and hearts, and sparkles… I’m going to have to get creative! May brings Joy’s birthday and Virden’s. Joy wants a Dora theme……. I don’t know where she came up with that as they don’t watch Dora… But I’ll have fun with that, I’ll have a pinata that Swipper swipes and they will have to follow the Maps directions, going down the street, playing hop scotch and a few other things then coming back to find the pinata in the back yard. I think it’ll be loads of fun for a 6year olds birthday. Oh and her cake? Not Dora, nope she wants it to look like the Candy Land board game. I actually have a recipe and directions from a magazine! It’ll be fun except the cake has to be decorated with the candy the day OF the party… so I guess I’ll be busy! But it’ll be loads of fun! And that’s the birthday season, there are 3 birthday’s all in July but that’s the only other really busy month.
Bought Orlund a wii for Christmas, and bought him the wii fit for his Birthday. It actually works out great because with me having a cold sensitivity and low energy the girls aren’t getting much exercise.. but with the wii fit we have them running every night! I don’t like so much technology but for now it’s working out perfectly! They get their exercise and I don’t have to bundle up 3 kids! LOL.
Well I think that’s it for this blog post! I’ll be sure to get those pictures up as soon as I can 🙂
So sorry I’m behind on the blog 🙁
Today I had Chemo round #6. So I officially only have 6 left to go 🙂 It’s exciting and tiring thinking that I’m half way…
The Chemo I’m on is a ‘less harsh’ kind, I’m so thankful it’s not a harsh kind! Chemo is not fun. Plain and simple. If you saw me on the 9 days that I feel good you wouldn’t know it’s as hard as it is. But the other 5 days (this is every 14day cycle) you might not even recognize me. You can feel Chemo cursing through your body, like a poison, a heavy weight weighing you down. I have cold sensitivity which makes drinking water difficult, it gets colder as I drink (and due to Chemo and my Ostomy I HAVE to drink at Minimum 8glasses a day). It feels like crystals forming in your throat. This also makes my tongue go ‘lazy’ making me talk funny and slur my words. My hands and feet go numb and tingly when cool, actually any part of my body does. My hands also feel like they are seizing up, or getting lazy as well, making writing almost impossible (luckily they are working right now). nightly Orlund and I play dominos, I fumble the tiles and have to shake my hands out regularly to try to get them to ‘wake up’. I also have what is referred to as “Chemo fog”, it’s like I’m in a fog and have a hard time connecting things like I normally would (took me like 15 times watching those ‘don’t be a luger’ adds to figure out what they mean). I also have apparently short term memory loss, which is a side effect of Chemo, and from the Coma/trauma I endured. So we try to play games and keep my mind active. I’m very tired and some times I can’t physically lift myself up to get going. I call Thursday and Friday ‘movie days’ because when Jacob is napping I put a movie on for the girls so I can nap too.
Chemo makes homeschooling a bit more difficult as well. I don’t have the energy I wished I did to make it more fun, but I do the best I can (and hey, it’s Kindergarten). I basically do the regular schooling on my ‘non-Chemo’ weeks and then cram the other weeks into 2 days! Luckily Orlund is doing math with Joy so he can do that every evening easing the load for me (I just discovered it’s a seperate curriculum so we are a bit behind! lol).
That is basically what is going on in our lives. Our lives are broken up into 2 week segments, chemo-week and non-chemo week. Just like our weekends, making Christmas shopping more scheduled than usual! November 30th we are celebrating Christmas with my family, so had to do all that shopping last weekend. Just like there is only one other weekend that is a non-chemo weekend before Christmas with Orlund’s family! Gotta get their lists!!
Through all of this I have to keep Praising God. He is just so wonderful to undeserving me. Honestly. As I think back on all that’s happened He had everything scheduled and timed out perfectly! And He continues to Bless me, my Hemaglobin is staying nice and high (actually went up a little again), so I’m able to stay on track with my Chemo. (Which keeps Christmas as a non-chemo week!). Thank you God for loving me so much to send your precious Son Jesus to make a way for us all!! And as Christmas approaches we celebrate His birth!
God Bless you all!
Hi. I have a new post…I’ve even started writing it…I want to post it…
However I have some Christmas shopping to do (Christmas in January with my family as Mom is home! YIPEE).
I still have to finish Olivia’s Christmas gift (just hand stitching)
And a house to get clean…………along with finishing Joy’s Scrapbook….
But I promise ~ I will post soon!
For now I leave you with a cute picture of my littlest squirt.
Sorry Honey, 10 more sleeps before Santa comes….
Isn’t she cute?